Greetings everybody. Just wanted to share some ongoing issues as I approach my 2 year anniversary from diagnosis in about 3 weeks.

My shoulders have been a disaster in terms of stiffness, with pain radiating down into the center of the shoulder blades. I am removing wallpaper in our master bathroom, which has 12 foot vaulted ceiling, and am learning just how little I can do with my arms over my head. Also notice marked weakness and some pain in triceps. Tops of shoulders from neck to joint are very tender.

At the same time, my neck has been in a constant state of tightness, with tenderness along the entire course of the SCM and posterior. All of this is bilateral, with no untoward bumps, lumps or other issues.

Dry mouth is as bad as it has ever been. I have had a little upper respiratory thing that wife and I have passed back and forth for a couple of weeks, and I am almost over. I know it is winter and such, but wow.

I am on the computer a lot every day for work, and at home, so that probably doesn't help shoulders.

Anybody got any ideas here? For those who have used massage -- where did you find qualified person, and how often do you do it? Any ideas for the neck fibrosis?

Just had last follow up with ENT/Surgeon 3 weeks ago, and have next one with RO 2 weeks from tomorrow, so am not concerned on that end. Just trying to find out how others handle the gift that keeps on giving.