Good luck with your biopsy results Charm.

Yesterday's MRI results came back negative this afternoon. I guess I should take it at face value and be thankful, but the apparent rate of missed diagnoses using imaging makes it all a little hollow. Tongue symptoms come and go throughout the day. Sense of fullness in my neck on the same side comes and goes as well. I guess the good news is that with all these MRI's, they don't subject you to radiation like PET/CT.

The thought of just continuing to see an oral surgeon and an ENT once a month for a complete exam, Velscope and periodic MRI's seems foolish, not to mention expensive.

I am going to try on Monday to get an appointment at MD Anderson and see if they have any different thoughts or approaches. The symptoms are all consuming and when they started three or four years ago, I would sometimes go for days and weeks with no symptoms at all, now it is virtually every day.