 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Kristin
Sorry to hear you mom refused to get the PEG tube. She will need to work very hard at keeping up her nutrition. Glad you have some helpers for her. A notritionist would really be a huge help. I dont know what I would have done without mine. This might sound really odd, but I was able to swallow chocolate milk easier than water. Maybe she could try that, its 400 calories per pint and about the consistency of the nutrition drinks.
There are alot of drinks out there to help her like Ensure, Boost, and Carnation VHC. The Carnation one is what many people here have used since the calorie content is so hi. Its not easily found on store shelves, it will eed to be specially ordered thru a pharmacy. You could even order it online using the Amazon link on the main pages of OCF, it helps OCF.
Keep posting and feel free to ask questions, so many people here can guide you thru this stuff.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
