Hi Steve,

You and Jack were on the same treatment timetable and I remember those low points all too well with him. Getting the PEG tube out and starting to eat is a big step forward so congratulations on that. Jack continues to supplement his calories with the leftover cans of formula and flavored syrup added, but he's adding new foods to the "this will work" list every week.

The dry mouth seems to be his biggest problem and truthfully it's too early to tell what the final status of that will be. I think Gary said his came back after 18 months. They're trying acupuncture with Jack to see if that will stimulate saliva, which is a little weird but not the dumbest thing we've done with this.

You're right that no one can really prepare you for the "result of the treatment" side effects but it sure helps to be able to do a search on the home page or forum to know you're not the only one going through it. Considering that the rule of thumb is a month of recovery for every week of radiation I'd say you're doing well.

Amy is right about being able to use your experience to help people who are just starting out. Jack and I cannot believe the difference in where we are now versus those early "you've got to be (expletive deleted) me" days. Time has a way of helping you put things into a better perspective and I can honestly say we are feeling that new normal that everyone told us about but I didn't actually believe in the beginning. It's encouraging to know that we are all capable of making adjustments - particularly when there's no other meaningful choice.

Your story is great and very representative of most of us. Welcome back and good for you for getting here.

Regards JoAnne