Hi Stephanie,

I try not to dwell on it, otherwise I would go crazy or should I say crazier, but I wish that I had of tracked down someone that would of been able to perform my first operation without slicing my jaw and opening me up like a door.

Unfortunately, in this country up until recently most of the surgeries where a large amount of the tongue had to be removed like mine they were accessed by 'cutting and shutting' the jaw.

Now they perform them by going under the chin like yours.

Geeez I can't tell you how much drama that would have saved me had mine of been done like yours. The consequences of which I am still dealing with in a huge way. It gives me a headache just thinking about it - The IFs, BUTs and MAYBE'S...!!!


Take care

Karen





46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery