| Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Im geographically challenged, so I appologize in advance. Is Burlington county towards the shore? South Jersey?
I grew up in Warren county, very close to Hunterdon county a very very small town of about 100 called Finesville. Im now in Lehighton PA which is about 45 min. from NJ. Where I live is considered the southern Pocono's, if you have heard of that. There are several active members who live in NJ.
There are also some events being planned for next year in NY and in PA (not sure about NJ), which you may be interested in attending. Its amazing how much better you feel just be meeting other oral cancer survivors in person. When I met some, I cried out of sheer releif that I wasnt alone in my suffering anymore. I actually now knew in person live people who understood how bad it can be. By the time these events take place, you may be up to going and meeting some OCF members in person.
Im not sure if I understand your post. You said that you had counted your biopsies as surgery? If you have SCC stage 1, how was this treated? Biopsies only confirm it is cancerous. The PET scan will help to stage how far it is advanced. Sorry to sound dumb, just trying to understand how you are being treated.
Glad you are feeling better now that you found OCF. It does take a huge burden off your shoulders just knowing there are so many others out there who have been where you are. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |