Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Catherine, that does seem like a bit of a wait. Early stage cancers are often treated by surgical resection only. Radiation typically doesn't come into play until stage 2-4 and 2 is on the fence.
You've already had a biopsy - why the second biopsy?
Staging for OC is typically based on 2 factors (there may be others but this is based on the TMN system TXMXDNX (T= tumor size, M =metastesis or spread beyond original site and N = Nodal involvement) There is also a grading system for the tumor: 1. Tumor size (in centimeters) and 2. Lymph node involvement (yes or no)
Without knowing the particulars of your case (and I am not a doctor), you could very well be a T1M0N0 (which is as good as it gets):
A 2mm tumor is the smallest size that can be detected on any scanning modality. Since the area is healing from the biopsy a PET may yield false positives because of the increased uptake from the healing process. Problematic lymphnodes can be detected by palpation, MRI, CT ot PET scans. Usually it takes a while for lymph node involvement, as in a more advanced stage. I had no lymph node involvement and my tumor was a stage III/IV that they estimated had been there for over 2 years. So even large tumors may well be "well differentiated" - no spread into adjacent and different tissue types, in otherwords contained in a small area. So how differentiated your tumor actually is, is just as important as the staging (if not more important than staging). Poorly differentiated tumors tend to be more invasive and agressive.
I was Dx'd on Nov 22, 2002 and didn't start treatment until late January 2003. So some delays are typical. It can also be a little harder in December when key people take time off for the holidays.
What Brian gave you was a general rule and early detection is vital to improving outcome (particularly the intial diagnosis), however, your situation is a little different, you already had it detected, biopsied and, unless the doctors are totally incompetent (VERY unlikely since you are at a CCC), they must not feel it is a not a clear and present danger or they would be acting faster.
Oncology departments are on overload - it will shock you once you get into the system just how many people are being treated for cancer. They may have done a triage on you, determined that the outcome won't change with a minor delay in time. Post Tx follow up visits are at 6-8 week intervals initially because the NCCN has determined that nothing will change radically enough in that time period to render it untreatable.
Anti-anxiety meds helped me a lot as well.
Take a deep breath. Enjoy your holidays as best you can.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
|