Before you go flying cross country, consider doing it virtually first. Take up your doctor's offer to do whatever he can by asking him/her to make digital copies on CD of all the tests, scans, and even the doctors' reports themselves plus full medical history. Then call Anderson, John Hopkins (and I would add Lombardi CCC in Washington DC based on their candid assessments with me) and get proper email addresses and mail addresses. Most CCCs will do a preliminary workup from the data even if you were to go in person. This way, if one of them does offer hope- you can fly out in person to follow up. Just a suggestion as I found air travel to be daunting with delays, security confiscating my water despite dry mouth and doctor's note, sick travellers pummelling my immune system with coughs and sneezes and this was after treatement and recovering. Good Luck.