 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Bill:
Heres some help with the peg feedings. It will ease the nasuea if you water it down with an extra 1/2 can of water. Try using a feeding pump, if you dont have one ask your doc for a prescription and run it slowly overnight. Gotta lay down propped up on 2 pillows and start out with a speed of 40 and gradually increase it by about 20 every few days til you get up to about 160. Just slow down and water it down those two things will make the world of difference in your feedings.
Right now is a rough part in your tx. Hang in there and push like crazy for 3000 calories so you maintain your weight. Losing any weight right now will make you only feel worse.
The mucous lasted about 1 month for me. Then it turned into dry mouth which lasted about 8 months. Taste buds are gone for quite a while, mine took about 4 months before I could taste anything except the flavor of burnt. That was even water tasted burnt.
Hang in there, you will start to feel a bit better very very soon. Thats whats called walking out of the tunnel, you will know when you do.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
