Grrrrrrrrr I just typed a page and hit the wrong key somewhere. GONE. Welcome aboard Amy. I think we all had to take the baby steps until someone finally listened. Got checked a few times at ERoom for some strange things happening to my mouth, like teeth falling out or breaking off. Oh yea, take this pill and it will go away. I was getting a scope every 3 months for my esophagus so I asked the Dr to check me out while he was in my mouth and throat. When I came to he was there and told me he had made an appt. for me with a good Cancer surgeon and to make sure I kept it. He said it didn't look good. Within a few days I had begun my journey and a War. I won't type anymore, but you know the rest or will soon. Let me wish you good luck and get yourself a good positive attitude and you will kick butt.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here