Sorry to welcome you.

Likewise I had a jawline lymph node involved with my Occult Primary.

Since your tonsils were removed, your Primary is likely elsewhere in you oropharynx region. I know base-of-tongue is often mentioned as a possibility for a near microscopic size tumor.

For sure you want them to do everything possible to try and find your Primary. These days it is very rare for a CCC team to not find it.

In my case, in addition to the PET/CT and several scope session (one while I was in surgery for my neck dissection and tonsillectomy) they tried an ultra HiRes CT scanner, but no luck.

If they can't find it they will likely have to blast a lot more real estate with a lot more with Radiation.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11