"Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Sorry to welcome you.
Likewise I had a jawline lymph node involved with my Occult Primary.
Since your tonsils were removed, your Primary is likely elsewhere in you oropharynx region. I know base-of-tongue is often mentioned as a possibility for a near microscopic size tumor.
For sure you want them to do everything possible to try and find your Primary. These days it is very rare for a CCC team to not find it.
In my case, in addition to the PET/CT and several scope session (one while I was in surgery for my neck dissection and tonsillectomy) they tried an ultra HiRes CT scanner, but no luck.
If they can't find it they will likely have to blast a lot more real estate with a lot more with Radiation.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
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