Hi everyone. I first posted a few months ago about my problem tonsils:
http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=74926#Post74926I finally got in to see one of the Moffitt-affiliated doctors that treated DavidCPA. It took awhile for my referral to happen. I wouldn't have been seen so soon if David hadn't put in a word for me. Thank you so much, David.
So, the USF/Moffitt ENT takes one look at my tonsils and says if he was in my situation, he would have them out and the sooner the better. He doesn't like how big both my tonsils are for an adult and he is particularly concerned about the blood I have in my mucus every morning so he wants to do an endoscopy at the same time as the tonsillectomy. I do have terrible acid reflux and inability to swallow (I regurgitate through my nose as the left side of my throat seems incapable of pushing food DOWN) so he can't rule out my esophagus or stomach as the source of the blood.
My referring ENT says don't do anything. He sent me to this ENT to confirm his opinion.
I STILL have hrhpv in that other location and a week ago, had ANOTHER bad pap (story of the last few years of my life) after one good pap earlier this year but that still showed hrhpv. Needless to say I have sworn off all even remotely sexual activity indefinitely. I can't believe all the care I have ALWAYS taken with my sex life didn't help one iota. Anyway, the downstairs lesion I had removed last year recurred so it's again back to the gyn-onc. I know that hrhpv in the downstairs cavity doesn't automatically migrate to the other cavity, but I engaged in certain activities that surely put the hrhpv in my mouth as well. There is just no test to confirm its presence orally.
I don't know how I feel about this...both ENTs say an adult tonsillectomy is torture. It sounds worse (more painful) than my neurosurgeries. I am moving to Houston right after Christmas so I would need to move on this asap (I can't take 2 weeks off in Houston).
Should I choose to have them yanked I don't know who to go to...my regular ENT is in town and convenient but this ENT is affiliated with Moffitt and sends all tonsils to pathology for some sort of slicing. I would have to ask my regular ENT if the lab in town does that. The huge difference in opinion is concerning. If there is nothing sinister about the tonsils I will feel really bad for having had ANOTHER unnecessary surgery (I had two neurosurgeries in 2004 that I should not have had...was led astray by doctors), be out 2-3 weeks from work and however much it costs. Can I have your thoughts please? Thanks so much.
