Nancy,
I had two bouts of SCC tongue cancer, 13 years apart. The first one was very localized and they did not recommend further treatment. In retrospect I still feel that was the correct decision. I had lots of problems when I had to have radiation with the second cancer and I was glad to have had a pretty good 13 years. I used to get some soreness on the tongue and it rubbed on my teeth. As far as getting scared when you see a spot, it was that terminal paranoia as I called it that saved my life. My doctor always saw me quickly and biopsied anything suspicious and we found my second cancer very quickly also. My dr with my first cancer had been reluctant to use radiation if not necessary so that it could be used later if I had a reoccurance and I was glad to have 13 years without the side effects of radiation.
Ilene