 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Victor:
Congrats on finishing your treatments. Now is the time to rest and heal. This bad spell doesnt last too long. Try musinex or robotussin for the mucous. If you dont have magic mouthwash askl your doc for some, it will soothe your mouth.
You could try turning up the feeding volume and using it while sleeping. Just make sure to sleep propped up on 2 pillows. If you put 4 cans in a bag and run it all night on 60 you will find it much easier to get the rest in daytime. Or even a combo of 3 cans formula and 1 or 2 cans water. Dont forget to try to swallow a few sips per day if you can.
Best of luck to you during this darker stage, it will get better soon. You must be superman driving yourself thru all you have been thru, dont let this little bump affect your remarkable strength.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
