Ruby:

A port is much easier to care for than a picc line. They basically do the same thing but a port is under your skin. The picc line takes special attention to it daily.


I was told my port needs to be flushed every 4-6 weeks. I wish I could go every few months. I go every 6 weeks to get it flushed. After one more pet scan in Jan, if all is good then its coming out along with the peg tube.

Best of luck with the peg tube surgery. You may feel a bit uncomfortable for a couple days. My belly was a little sore for 2 days when I had mine put it. Now its no big deal anymore, its there but usually I dont feel it. It just needs to be flushed daily, I do mine twice a day. One advantage of having the peg tube is you can put most medications in there so you dont need to taste yucky medicine.

Are you working on getting lots of calories and drinking lots of water now? Hopefully you are eating all your favorite foods and not worrying about gaining weight. Eat everything now, it could be a while before food tastes the same once treatment starts.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile