 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | That was in my opinion well done except they never mention us OC survivors. It would be nice to see one of ours on the next one and let people know 1st hand what we have to go thru with loss of tongue and neck dissections ' rads & chemo and the balance of our lives. Some of us would be hard to understand , but that's a part of the torture we go thru. It's good that I know what I am saying at times and feel bad for those listening.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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