 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I had Cis x 3 and the first one was a piece of cake. The second was like being run over by a VW and the third was the worst. I suffered permanent high frequency hearing loss. I haven't gotten hearing aids but I do not hear many things during the course of a day. The nausea was horrific and nothing seemed to work for me from the second one forward. Certainly the added doses of radiation combined with the chemo didn't help but the rad was a given. Now that was 2 years ago and since then, perhaps starting a year ago, I have read many posts here where they were given weekly doses of cis and I don't remember any saying they suffered the same side effects as me nor do I remember any saying their Tx was determined to be sub par. I would seek another point of view if possible.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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