Brian,
We received two second opinions after the chemical butn. Emory was a joke and they really didnt even examine him. We then went to UAB where the Dr advised that usually treatment decisions are left to the patient but in his case she concluded that the chemo had done too much damage and that it should not continue.
I have a copy of most of the records. All of the doctors have forwarded extreme amounts of records to UAB.
They all say that his case is unusual and that they dont know how long they will last. It has been mentioned that there is a chance that he will never be able to eat by mouth because of the damage to is throat and the aspirations.
I constantly brought up hearing issues and the ringing in the ears. The doctor said he had no idea why he was experiencing it.
Numbness was brought up too but DR pretty much ignored my communication. It was noted on the medical records but by the time he had the last dose I was screaming about the NUMBNESS AND HEARING. We were only urged to do the 5FU and never told that it would be in conjuction with Cisplatin that is the only reason I didnt put on the brakes. I knew by then that Cisplatin was getting to him. Drs have tried to lead us to believe that the chemical burn was due to reaction to the 5 FU but I have come to suspect that it was problems with Cisplatin in combination with 5FU.
Not to mention that his blood work was shake at best when they did the last treatment.
Dr Mike,
Yes my husband had huge snoring problem before he got sick. The world knew that he was an exceptional snorer. When treatment started I expected him to be exhausted and sleeping but he never did he was very hyper and slept very little. Chemo seemed to put is adrenaline in overdrive. He was tired but if he slept he had nightmares, night sweats and easily woke up. He has been using sleep meds but when he is at his worst physically he doesnt sleep. He barely snores anymore.
My husband didnt have throat surgery but snoring improved and sleeplessness has taken over.
Thank you all for the help.
