My husband Craig is 50 (nasophyrnx T2nb) Finished treatment 2/18/08 (35rad 3mega Cisplantin) and did extremely well.

Then the MO talked him into doing 5FU(5 day pump) with Mega dose of Cisplantin 3/10/08. He experienced a chemical burn that put him in the hospital for 9 days due to the extensive and severe burn from his mouth thru his esphogus.

So we went to UAB and got a second opionion about further treatment and she concluded that his body could not take any more chemo.

Since them we have been fighting many after effects.

Aspiration from swallowing
Neropathy
Pnemonia with HIGH fevers that knock him down every 3 days.
Dizziness and fainting
Fatigue
Low RBC
Continuing yeast problems
Unable to eat anything but fresh fruit
Muscle spasms thru his whole body and then uncontrollable shakes
No apetite
Lung doctor scoped his lungs and said he had never seen anything as bad as his throat. They could not locate his vocal cords 2 weeks ago.
Throat has been stretched 2 times
Doing swallowing therapy

His new MO says that he is an unusual case. I say they gave him too much chemo. Shouldnt he be improving some??

We are so tired of living this nightmare and dont understand why he isnt getting better.

Any imput is greatly appreciated!!!