 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Edgar,
Congratulations on completing such an important milestone in your journey. Stop and enjoy the moment as the journey is measured by such small steps along the way.
What you are experiencing right now is pretty much on course. There is such a flurry of activity up to the day of your last treatment then everything comes to a standstill. The silence can not only be deafening but it gives you so much time to just sit and play the "what-if" game. Focus on the accomplishment at reaching this point, keep busy if you can and learn all you can so the unknowns won't become your worst enemy. The road ahead is very rough but well-traveled. Ask anyone anything and your peaks and valleys will only be small bumps along the way.
Hang in there because it won't improve overnight.
Warm wishes,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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