Don:

My magic mouthwash was a mix of malox, lidocain and benadril. There are alot of different combos, mine I used several times a day to numb my mouth so I was able to drink. The nystatin is what burns your mouth, I had that for thrush.

Keep swallowing water even if it tastes bad and burns your mouth. It will help you down the road so you dont have to relearn how to swallow.

I know how much you hate the peg tube. It sounds like right now its about to become your friend. Hopefully you have practiced using it so you are able to know which way you tolerate the formula feedings and if you can tolerate the formula. I had a hard time with the gravity method and also pushing it thru with a syringe. I had to get the feeding pump and use it overnight, which wasnt so bad. It also took me several formulas before I found one that I was ok with.

The fentanyl patch will take about 24 hours to kick in. It will make this so much easier if you dont have to constantly think about when to take your pain meds. You may still need to take alitle for break thru pain occassionally. I use hydrocodone which I think is generic lortab, its liquid and goes thru the peg tube. Dont forget Robotussin can go thru the peg tube too.

Hang in there you are about half way finished.