Victor,
This is your life we are talking about...I think someone needs to start listening and you need to escalate your requests to the office staff to someone that will pay attention. How far are you from your Dr's office? If no one will call back, just show up and be a butt head...this is nuts...you are at least owed a phone call! As a contrast, I can email Bill's MO and usually have an answer back within minutes.
It is time for you to stop worrying about being nice...I can assure you that if anyone in that office had your DX, they would expect more attention!
Hugs (since I sound so rough), Deb