Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I just don't know that much about your particular cancer. Perhaps Brian can shed some light. I am not much on aggressive vs not that aggressive when it comes to treatment but I am in the minority. This cancer is a funny thing in that I have seen people get the full blown aggressive in every way treatment and not survive and I have seen the minimally aggressive ones survive with the same staging.
Now the main goal is to keep you alive and this cancer will definitely kill without Tx but second to that goal, without which there are no second goals, is quality of life after Tx. So it becomes very difficult for doctors treating our cancer to balance those 2 goals together because if they don't treat us to the right degree of aggressive the second goal doesn't matter.
I went to 5 different cancer doctors and got just about 5 different Tx plans and 5 different percentage chances of survival. The odd thing was my best, in terms of less surgery, Tx plan came with my best chance of survival by the best source, a Comprehensive Cancer Center. Now back before I started Tx I didn't have the advantage of this site and in fact I didn't find this site until AFTER my Tx was over, so I knew nothing of this cancer and others' experiences compared to now so I feel lucky in many respects to have been treated the way I did and have survived with minimal quality of life issues.
Can't tell you what to do but I found getting so many opinions an education itself.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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