Hi everyone!

I can't believe that I have only 5 more rads and 1 chemo to go! It feels so good to be within sight of the finishing post.

This has been a tough 5 weeks so far and while I know that the worst may not be over yet - I feel confident now that I will make it and be stronger for the experience.

I have been going through mood swings, severe mucositis, severe constipation, burns, tiredness etc. I have avoided having either a PEG or a naso-gastric tube by keeping well hydrated and eating regularly - with the significant help of lignocaine and other drugs.

My mouth and throat are sorer this week but I am better at pain management now and my RO was impressed by how well I am doing considering the collaterol damaage that exists internally and externally in my mouth, throat and neck. Given my relatively low dosage levels of morphine she seems to think that I have a much higher tolerance for pain than is normal. This has to be a good thing with this type of cancer!

Anyway I'm doing well, except for the occasional emotional overflow, and very much looking forward to the end of next week!

Thanks for listening!

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva