Hi Kevin,
I work shift work (in Emergency Communications) so I think that may be the reason that the RO doesn't want me working. Also I will be having weekly Cisplatin and on those days I have to be at the hospital from 8.30 am and then have radiation at 4.30pm. I'm not sure how long the chemo takes but I'm assuming at least 6 hours. Also the MO said that the nausea etc may last for several days afterwards. I was suprised that I was given such a strong NO to working when we asked the question, because my employer was happy for me to adjust my hours during treatment. At the end of the day, though, I want to do everything I can to rid myself of this nightmare so I will do as I am advised. My employer is very supportive and I will not lose any pay as a result of this. I am very, very lucky in that regard.

Hi William,
I'm not sure what will happen as far as a feeding tube goes - the RO made a fleeting mention that it may be required but other than that I will have to wait and see how I respond to treatment. I've always had a healthy appetite and even with my previous surgeries had no problem eating and lost no weight. I know that this will be a very different experience but I'll take it as it comes - and do whatever I need to to get the best outcome!

Eileen,
I will definately follow up on the massage question next week. If there is a way to reduce the swelling I would love to do it!

Regards to All - Sue






Last edited by Sue G; 06-13-2008 06:34 PM. Reason: not finished - hit the wrong button

55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva