Hi Vin, I remember you, I don't know if you remember me, because your wife finished her treatment just a month after I did and we had many of the same problems with swallowing and persistent mouth pain. I also had my thyroid quit on me and a lot of fatigue before they finally got it adjusted right. And what really interests me is I still sometimes have quite painful leg/foot cramps and everyone has told me this can't have anything to do with my cancer treatment and now I wonder.

I don't have severe blksiering on my lips, just dry lips, but I do have some mouth blisters that don't want to heal that make it hard to eat. I will say that unlike your wife, I am not on prescription meds still. I get by-- with a fair amount of chronic mouth pain-- by taking OTC anti-inflammatories (naproxen) most of the day. I still have my g tube because I think I may have some additional issues with a worn away epiglottis that your wife doesn't have but I also have basically had 3 years of hell and am now trying to mentally gear up for a painful surgery that hopefully will help relieve the trismus and jaw cramps I have. But, like your wife, I have gotten the all clear in terms of being cancer free at all my checkups and I am grateful for that.

I have not had HBO therapy recommended to me and I wonder how much of that is because it isn't available to me locally--I would have to get it at a hospital over an hour away and maybe my docs here aren't aware how much it might help. I need to ask about it more. I also would be very interested in hearing how it helps your wife.

I hate to say it but it really is true in a way that "misery loves company" in a sense. I feel a little better knowing I am not the only one that has had long terms pain and healing problems, though I really wouldn't wish it on anyone else. Anyway, if you want tell your wife I'm still having issues too and maybe it will make her feel better. And I really hope the HBO therapy helps.

Nelie