Hi Vin, I cannot begin to imagine how hard this must be for both of you. As Jim said, sounds like three years of hell! I wish I had any insight to offer you, but I'm clueless. The Fentanyl patches were so bad for me that I used them for four days before realizing that they were making things worse, not better. I am so sorry about your wife's pain for all this time, and I really hope that others can suggest some concrete advice. I'm wondering if any relevant clinical trials in pain management or other aspects of your wife's experience might be able to provide meds that are not yet available to most doctors.

The one thing I CAN do for you is pray, so that I am doing now and will continue to do so. Please tell your wife that I am thinking of her and very specifically praying for her physical and mental wellbeing, as well as for your strength together in finding the best way possible to meet your combined needs.

You are doing an amazing job of checking out different resources that might help. God bless you, and please let us know if anything changes.

With concern and prayers,
Carol

Non-smoker non-drinker, 50 when diagnosed 9/11/06 stage IV scc of oropharnyx, malignant lymph nodes both sides of neck. Cause=HPV16. Daily chemo & daily IMRT for 7 weeks. In 2 clinical trials at Johns Hopkins, good results. Peg tube out March 07. Update September 2014: gratefully in good health!