My crappy doctors just want to fill their sheduals.
My latest feeling that i am just getting thrown around.
Last wednesday the day before my second chemo session i get a call from the radiation oncologists office saying that they want me to come in to get mapped and mask made the next day.
I explain that i have my second chemo session in the morning and
dont know how i will feel can it be another day. They tell me no the radiation onc is leaving for vacation and will be busy when she gets back i need to do it then.
First of all i thought to myself it will be 7 more weeks till i am to get radiation. And i read how people have had to have masks remade because of wieght loss.
Plus they are supposed to be shrinking my giant lemon sized lymphnode with this 6 weeks of induction chemo , so how are they going to mark and map me now?
I have read people get mask made no earlier than a week or 2 before.
I wanted to switch anyway last week when i found out that the same radiation machine and treatment was availible at the hospital where i am getting my chemo. And my crappy surgical onc had set me up at a radiation place thats was far away ( i was told because of a long standing relationship with a doctor there)
So on chemo days when i getting radiation i wouldnt have to travel and check inn and wait.
So my social worker got me switched and i met the new radiation onc and he tells me he wont make my mask or map me till 10 days before my treatment starts not 7 weeks like the other place was trying to do.( i didnt tell him or complain to him telling other doctors about other doctors doing wrong i think is like telling cops on other cops they dont want to hear it and would never do nothing about it)
My surgical onc the one who was sending me far away to his buddies radiation is the same guy who tried to put in my feeding tube and port a month early just because he had a opening on his shedule. His secretary called me the day before to go in and get operated on when i hadnt even met with med onc or anybody and didnt even have a start date which ended up being 6 weeks later so i was supposed to walk around with a tube for 6 weeks because he had an open spot on his shedule, when i told them i couldnt go in the next day because of other appointments they called back and said ok we will do it next tuesday but first i have to go in for pre admitance anesthesia testing or something so i say well im busy all week can i go in monday , They tell me no you cant go in the day before we need to get the test results and etc. After i hang up the phone i realize they had just called me to operate on me the next day but then when i had to put it off to next week i had to get tested and it couldnt be the day before. I know what happened a spot opened up on his surgery sheduale so he was just going to throw me in didnt care if i have to walk around with a feeding tube i dont need for a few extra weeks. This is the same guy who sent me to radiation onc way across town
Ive got to find another surgical onc now i do not trust this guy. then on the day he finally did my port and peg tube i was shedualed for 10:30 am i was preped put on gurney with IV and ready at 10:30 then left in hallway till 2:30 for 4 hours came in didnt say a word to me. And my chemo nurse said to me my port
is not quite right i have to lay just right and cant move or i beep.
I got a few more complaints but i am in rhode island stuck with just blue cross and medicaid so i dont know who or what help i can get or how to tell when it comes times for surgery who is good.
Thanks Victor