Sophia, I have no advice at all, but I wanted you to know that I "hear" your frustration and your fear, and I hope you get answers soon. I do believe that most doctors know what they are doing, but of course we have to choose well, going to those who have the most experience, usually in the large centers. If you live near one, I would certainly go NOW for some second opinions. It does sound like you have something going on that needs attention, and as an SCC survivor, I sure would rush to the best doctor I could find! I will pray that you find just the right person to give you the best care possible.
XO--Colleen