Hi Minnie,
Good to hear that I'm not alone! Sounds like our scar tissue bridges are doing the same basic thing - mine is tethering the side of my tongue to the floor of my mouth as well as to the tonsil. My speech has been a bit more difficult lately, but where I'm really noticing trouble has been in eating. I've been getting a lot more "stuff" caught in the v that the scar bridge is making on the floor of the mouth and it can be very painful. The floor of the mouth itself is numb, but the scar tissue sure does seem to have plenty of nerves! I particularly notice a lot of discomfort if food is a little too warm - it can make it past my lips without hurting, but boy, when it hits the scar tissue it is agony!

I'll update if I hear anything from my doctor other than what you've been told by yours. I wonder why the body is so keen to generate new tissue in the form of scar tissue, but won't properly generate healthy tissue to promote post surgical healing after radiation?


Lisa
36 years old at diagnosis
SCC of the tongue T2N2bM0 Stage IV
post hemi glossectomy and neck dissection (3/28/07), finished 6 weeks of radiation and Cisplatin x2 6/19/07. Biopsy taken from right side of tongue 7/17/08 - results showed infected abscess and no return of SCC!