I have a band of scar tissue that has developed in my mouth and I'm wondering if anyone else has encountered this. The scar tissue has built a bridge that connects the floor of my mouth, the healed hemi-glossectomy site on the side of my tongue and my left tonsil. It has become uncomfortable. My speech therapist was the first to notice it (I'm due to be seen by my surgeon later this week) and is having me massage the band of tissue to keep it from getting "tough" for 5 minutes a day. She casually mentioned that the surgeon may want to "release" it, but she wasn't sure if he would because radiation damage would cause the tissues to have difficulty healing.

So - I'm wondering what to expect next. I would imagine that if this scar tissue does indeed become tough and fibrous - right now it is fairly stretchy - I would have more problems with speech and eating than I already do. Anyone out there who has dealt with such a thing?! Advice? Opinions?

Thanks!



Lisa
36 years old at diagnosis
SCC of the tongue T2N2bM0 Stage IV
post hemi glossectomy and neck dissection (3/28/07), finished 6 weeks of radiation and Cisplatin x2 6/19/07. Biopsy taken from right side of tongue 7/17/08 - results showed infected abscess and no return of SCC!