 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I asked my MO why, when I developed hearing losses, he didn't use Carbo in the first place and he said that in his opinion Carbo is just as effective as Cis but without the bad side effects but Cis has been the standard for a longer time and therefore more data is out there. He also said that only a small percentage develop hearing problems (lucky me again). Many treatments also break the dosages up now whereas I had 3 large IV's and now you see 6 weekly bags and perhaps that will minimize the ones damaged even more.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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