So this is what has happened since I first posted. We went back in to the head and neck surgeon that did his original surgery. He was apologetic about the last surgery doing more damage than good. I asked if this is what we have to expect for the rest of his life and he said that he may be this way the rest of his life. I asked if physical therapy would help and he didn't seem to think it would. He said he wasn't giving up on him yet. He is going to contact an oral surgeon and see what he thinks. Boy did we feel great after that! We went home and my husband took valium and tried to stretch his mouth and I got online and searched for anything I could find. I found a press release about a woman that had had basically the same surgery as my husband and she went to a physical therapist that practices the ASTYM form of physical therapy. This woman hadn't eaten in 3 years was dependant on a G tube. She couldn't swallow at all. She now can eat soft foods and open her mouth. I immediately went to the ASTYM website and looked up providers and found one here in the Portland area. They got him in the next day. Before they did his treatment he could only open 6mm and after the treatment 14mm. The therapist specializes in TMJ and has seen some radiated patients. So what I would do before considering another surgery is do physical therapy. Find someone that specialized in TMJ. The surgery they are probably considering is a coronoidectomy. This is a risky surgery and in my opinion should be a last resort. There is not a guarantee that it will help. My husband is seeing the PT three times a week and is now sustaining a 12mm opening and they got him to 16mm. He has only had 5 or 6 treatments. The therapist is confident that she can get him to a functional opening. (35mm) We feel like there is hope. If anyone wants to see the press release regarding this woman, please email me and I will send it to you as an attachment.


CG to husband, 47 nonsmoker DX 8/1/07 StageIV BOT SSC T4N2B. Surgery 8/16/07 Partial glossectomy, left ND 2 nodes involved with extracapsular extension. 10/1/07 Begin Tomo therapy x 33, 3 cycles of cisplatin. All tx complete November 27, 2007