It has been almost 5 months since my husband completed his treatment. Currently he cannot open his mouth more than a few millimeters. Not even one finger. What I would like to know is if anyone here got good results with any other surgery, therapy, drugs etc. He already has a therabite and it worked great after surgery but not after chemo and radiation. We met with his surgeon today and he says that he may end up like this for the rest of his life but he's not giving up yet. He will be calling a oral surgeon to discuss his case. I would also like to hear from anyone who has had a surgery for this and it didn't help. We are so frustrated. I hope I can get some information from all the knowledge and experience that the folks here on the forum have.
CG to husband, 47 nonsmoker DX 8/1/07 StageIV BOT SSC T4N2B. Surgery 8/16/07 Partial glossectomy, left ND 2 nodes involved with extracapsular extension. 10/1/07 Begin Tomo therapy x 33, 3 cycles of cisplatin. All tx complete November 27, 2007
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