Gary and Ed,
How do you guys get your doctors to give your medication to help with the spasms? I have been complaining about them for over a year now and all I ever hear is "go to PT". PT might loosen up my neck but it doesn't stop the spasms. It does make it tough to sleep and I have a difficult time sitting and watching my girls play their sports because of the position of my neck. I end up having to stand during the games. I would love to have some medication that could relieve it.

Minnie

SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.