Thanks Gary! I have had such remarkable results from the Hep C stuff and all liver functions are normal since 2003. I still limit the acetaminophen to 2 grains per day. My father is a pharmacist and we have been having lengthy discussions about codeine versus vicodin/loritab and he says codeine may cause more constipatin when taken longer term and oxycodone is considerably stronger. I have even gone back to the Fentanyl patches although only at 25 mcg/hr. The pain gets really tough sometimes.

The pillow thing isn't an issue because I can only last about 45 seconds on the side because of the shoulder surgeries. I use the pillows from Brookstone that really work well plus the wierd wheat or something like that pillow that conforms well.

I'm sorry to hear yours is progressivley worse but I know exactly what you mean. I have gone to a c-collar for all airplane trips and extended car trips as well. I just know something has to work.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023