|   Patient Advocate (old timer, 2000 posts) 
 Joined:  Jun 2007 Posts: 5,260 |    I agree with Lyn.  I finally realized that even talking on the telephone made my mouth hurt much more than normal, so I asked everyone not to call me. I call them and it's much better on my mouth and under my tongue. After a few days ZI feel much better by not talking so much. LOL  My jaws have motors it seems and go nonstop.   Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan.  I averaged  about 2 to 3 surgeries a week there.  w  Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube .  Had trach for 4mos. Got it out April.
 --- Passed away 5/14/14, will be greatly missed by everyone here
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