I think that there is a semantics issue at play in the chemical burns statement. The medical office said that to explain chemo induced mucocitis to a lay person perhaps. Chemical burns in the mouth would indicate that a chemical was put there and that chemical burned the tissue. I may be mistaken, but I do not believe that is how he received therapy. Severe mucocitis that requires morphine isn't that unusual, and I personally can attest to the significant pain from mucocitis. I was on morphine and pseudo morphines for most of my treatment period, and for months afterwards as well. The when the pain finally subsided, I was still on them during a controlled withdrawal from them.

Gary is right about doctor's written orders. Their staff may NOT deviate from those orders, but as Gary stated, it should have been clear to him that with a PEG tube and oral pain present, that orders written to accommodate alternate delivery techniques should have been in place.

Lastly dosing for high level pain medications is highly personal. It is not uncommon for doctors to start a low levels and over a short period of time increase dosing until relief is achieved. People die from overdosing, and tolerance to a drug must be verified by incremental dosing when they are systemic physical depressants.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.