"OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | My gawd!! What a trial you have been through - no wonder you need to vent. 5FU is a drug I asked my MO about and he said they prefer not to prescribe it as it can be a very dangerous drug with serious side effects. Maybe a consult with your MO is in order to see if another drug can be as effective? Also you might ask your MO for "magic mouthwash". If you do a search on this website you will find much discussion about the formulation of it, but it helps mouth sores during chemo. Perhaps it will offer your husband some relief.
One would certainly prefer to think that all of the medical staff got "A's" however there certainly are those out there who scraped by with a "D"!
Stay strong - it will get better.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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