Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | It is always interesting to me that we as a culture or a species so want to know everything. I'm as guilty of it as the next person and it was driving my husband crazy - constantly trying to figure out what he may have done... Our MO told us this is a fluke, a lightning strike and we just have to accept and move on to battle phase. So that's what we are doing. Not only is acinic cell rare, but having it be aggressive and moderate grade is even more rare. I can't even find people with this cancer, much less research on it - so we have to stick with the lightning strike theory :-)
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
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