Hi Simple Gifts--I love your name!

Interestingly, three weeks ago I asked this exact question of my onc., and the reply was that, since my husband and I have been together for so long (25-yr. anniv!!), we have most likely already exchanged whatever we are going to exchange. Also, my doc has not seen even one recurrence of an oral cancer primary tumor. The quite definite cause for my cancer was HPV 16 deposited via oral sex, according to my doc. As a participant in two clinical studies, I very much trust my onc team's assessment.

All that said, my sweetie husband and I are still pretty cautious while sharing intimacy. I think it's wonderful that you're forging ahead and enjoying life so much. Aren't we lucky to have gotten through this? During treatment, my husband and I wondered if we'd ever even be able to sleep in the same bed again, since I had to sleep sitting up. For so long it seemed that nothing would ever be "normal" again. We are so grateful to be together and for each other's presence every day, and we celebrate that a lot.

If you would share with us what your PCP said in reference to this, we forum folks would really appreciate hearing it.

Have a great weekend,
Carol


Non-smoker non-drinker, 50 when diagnosed 9/11/06 stage IV scc of oropharnyx, malignant lymph nodes both sides of neck. Cause=HPV16. Daily chemo & daily IMRT for 7 weeks. In 2 clinical trials at Johns Hopkins, good results. Peg tube out March 07. Update September 2014: gratefully in good health!