Senior Member (100+ posts) Joined: Oct 2007 Posts: 104 | Our experience with the radiation/chemo treatments was that it destroys taste (which will come back gradually) and with the pain eating and swallowing, and loss of appetite you just have no desire to eat. It takes about 6 weeks after treatment before the mucocitis and thick mucous abates. I remember feeling so relieved to have the treatments over and anticipating daily improvements, which of course didn't happen because of the continued effect of the treatments. We had been told this but I guess we just wanted this difficult time to pass fast. Keep your husband swallowing every day as much as he possibly can and make sure he gets whatever calories he needs through the PEG tube until he is able to take more orally. If he needs some pain medication to help with the pain of swallowing you could crush it, mix with water and put through the PEG. My husband did the same thing i.e. only sips of water and for a couple of weeks not even that, taking everything through the PEG. This may have contributed to his continued difficulty with swallowing, he was never able to get to even soft foods. Is your husband understanding the importance of continuing to swallow in his recovery? Is depression an issue? I guess I would advise encouraging every day and having different things available he can try but don't drive yourself crazy when he declines your offers. I assume you are working with a dietician at your cancer centre. Good luck and keep posting, there many good people with first hand knowledge on this forum to help you.
Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
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