My symptoms started in '05 with referred pain to the ear. At that point in time they couldn't figure it out and dismissed it as "Swimmers ear", but it persisted, later that fall having accompanying "Spasms" in my mouth, which they thought could be TMJ but later figured out it was the tumor digging into muscles under my tongue. Once officially diagnosed and a game plan put together I was told of the referred ear pain thing!! Anyway, I still have ear aches from time to time and I still have some spasms. Most of them any more revlove around cold weather, possibly the lymphatic fluids backing up when it's colder or more humid outside (Sounds weird but I have had some interesting conversations regarding that thought process with the doctors). My ears are much more tender now, following treatment, and also, when I seem more tired or stressed the ear aches seem more intense or frequent. I am feeling great though and I just passed my yearly PET/CT and all doctors think I'm doing remarkable, so I just deal with it. Like my RO told me, "As long as the pain isn't constant or consistent it probably isn't a concern. Just stay in touch with it and if anything changes dramatically inform us (Doctors) immediately."
Lolita, I agree with David!! I won't lecture because life is too short and who am I to Judge, but why go through all of the torture of the disease and the treatment to cure yourself only to add insult to injury and continue one of the root cause habits??? The cravings never stop but the heart and head know better and should be stronger!! Throw them away or get help!! You can do it.

Best of Luck,
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****