I can imagine the feelings you had when the Dr told you what was going on. Like Brenda says,, go for the gold that you have left as a family. You will be in my prayers daily and hoping the pain is limited for all of you. I blabber on but worry too.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here