 Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Your not trying to sleep with the trays in are you? You are only supposed to use them for 20-30 minutes a day. I put mine in when I shower in the morning. I use Berry flavored GelKam in them. Gets the saliva going.
As to the taste thing, I think those that had surgery and/or rads to the tongue will prorbaly have longer recovery times than
those who only got collateral damage. I found letting beer and soda go somewhat flat allowed me to tolerate them. I still drink soda that way.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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