Please keep my dad in your prayers, he is having a rough time.
I have not been allowed to see him, but he called today with this update.

Thurday night he spent in local ER, constipation due to pain meds. Sat night spent at Cleveland Clinic, his lip swelled 3x it's size as did the chin/neck wound from 2nd surgery (1/4)
2 bags of antibiotic got it under control, and back home.
He has home health nurse, are the wounds not being kept clean enough? Shouldn't he be on maintenance antibiotic until wounds are closed and healing?

I'm angry that constipation got him down again, and am angry that they allowed an infection to set in and get him down. He's struggling to bounce back after these 2 surgeries, and will have a 3rd this week. He still has the nasal feeding tube and it keeps dislodging and he said he just shoves it back in and tries water in the bag to see if he got it in right. I'm afraid he might hurt himself by doing that. Can't they "fix" it somehow so he doesn't have to contend with that too? I asked if he is allowed to swallow anything, he said no. I've read posts here that you can lose your ability to swallow, and am growing concerned that this could happen to him, but then I think that with a nasal feeding tube they must expect him to be able to swallow sometime soon, right?


Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"