Lynn,
I am one of the lucky ones who, at 5 1/2 years out am able to live almost as I did before. I can eat and enjoy the taste of just about anything that is not too spicy and, but for the water bottle that is a part of my hand,walk around enjoying life just like everyone else.

However, at 3 months out I was probably worse off than you.I still had a sore in my throat, I had a lot of trouble swallowing anything and in one of my swallow studies they discovered that I had a stricture in my esophagus which required dilation 2 or three times. I kept my feeding tube for approximately 10 months after treatment ended and for about a year and a half after treatment ended lived on soup and milkshakes. Things that required a lot of chewing were just too difficult to enjoy so I hardly bothered.
However a few months later, when I was almost two years out, suddenly I began to be able to eat all kinds of food. My taste came back, I began to enjoy food, and I could eat almost anything as long as it was not too spicy and I had water to wash it down. Suddenly I was free and could eat a sandwich on an airplane or even catch a quick meal in a McDonald's if I needed to.
So the point is...don't give up hope. I am by nature a very impatient person, but this stuff requires patience...that's why they call us patients! I agree with others...raise hell with your docs if you need to. I was treated at the famous MD Anderson Cancer Center. As good as they are at treating people with cancer, most of the docs aren't oriented to the wellness side of things. When I got depressed after treatments ended, I was the one who got in touch with the wellness people at MDACC and found out about free psychological counseling, etc.The medical staff never talked about it.

So, I repeat, keep the faith, and at the same time, be the squeaky wheel if things don't feel right.

Take care,
Danny G.