Lynn:

Im in the same situation as you, and it really really stinks!!!!

Unfortunately, it takes a long time to heal up enough to eat properly. There are several posts similar to yours about this same subject. Seems the general consensus is that it can take up to 18 months to get back to normal or near normal. Of course everybody is different, but we all must have patience and give our bodies time to heal.

Trust me, I dont like the PEG any more than you do. I have struggled with it the whole time.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile