Mandi, I have never read the feelings of a care giver as well as you just put them. I thnk you covered all of the bases that a lot of us with OC never realized. I do bekieve you have the knowledge to write a book. Go for it...

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here