Well, I called them to begin with and asked if my policy would cover the Jevity and they said yes, with a letter of medical necessity from my doctor. My medical oncologists' office took care of the letter, although really it seems to me either the radiation oncologist or the ENT could have done it. But the MO's office has the most experience, I think, in terms of knowing what insurance companies want ro hear, they're willing to call the insurance companies and argue about a decision too, and they offered to do it (they also successfully got my prescription drug insurance company--a different policy--to pay for twice as many Zofran pills as they were going to pay for at first--not totally sure how).

So they sent a letter of medical necessity to the medical supply company that ships the Jevity to me (called Lincare, I'm not sure if they do this nationally or not) and Lincare claims they sent it on to the insurance co. Two months later the insurance co. was saying they didn't get it. So the MO sent the letter again directly to the insurance co. Just to eb safe I also had Lincare send another copy of the original letter.

Another two months go by and still no payment of the growing Lincare bills. My husband calls the insurance co. (it was still pretty painful for me to talk then) and they say they can't tell him the status of a claim because he isn't me (which is wierd because he's called them with questions about other claims related to all the gazillion bills we've gotten for my treatment and they gave him the info. he needed) BUT they DO say that IF they got a letter of medical necessity there should be no problem. Two more weeks go by, another unpaid bill, and I call them and after a LOOONG time on hold I'm told that the reason they haven't paid is ebcuase Lincare added somehting to their bill that "made it look like the wrong billing code. It's stuck in our system because of that". Well could they change it to the RIGHT billing code so it unsticks? Yes, he THINKS they could do that.

At last some of the bills get paid.

They're now holding up payment on the MRI and PET scan I had as a followup to treatment back in Spetember. They requested extra justification from my ENT, his office sent it but now its under review and the "the review process is backed up".

It seems so unfair that when you're feeling really sick is when you have to spend so much time checking bills and argue with insurance companies over things!


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"